New report | building the knowledge base for scd: a nine-country landscape analysis
To mark World Sickle Cell Day, the World Coalition on Sickle Cell Disease launched Building the Knowledge Base for Sickle Cell Disease: A Nine-Country Landscape Analysis.
This work responds to a persistent challenge facing the global sickle cell disease community: the absence of a clear, shared and sufficiently detailed picture of how SCD diagnosis, treatment and care are being delivered across different national contexts. Without that foundation, it remains difficult to identify the most important gaps, direct resources effectively or align stakeholders around practical opportunities for progress.
The analysis covers Burkina Faso, Côte d’Ivoire, the Democratic Republic of the Congo, Ghana, Kenya, Nigeria, Tanzania, Uganda and Zambia. These countries were selected in consultation with WCSCD members to reflect a range of anglophone and francophone settings, health systems, disease burdens and levels of programme maturity.
The research was structured around a common framework developed with member input, comprising 68 questions across ten thematic areas. The Secretariat then conducted extensive research and a systematic review process to ensure that the findings were current, country-specific and supported by underlying evidence.
The publications will be released in stages:
Around World Sickle Cell Day: An Executive Insights Report presenting the principal cross-country, thematic and country-level findings.
Ahead of the UN General Assembly: A visual infographic distilling the report’s major findings and implications.
October through December: The nine detailed Country Landscapes, released in three groups of three countries.
The Executive Insights Report provides the headline picture, while the Country Landscapes will make the full underlying evidence base available to stakeholders seeking greater depth on a particular geography.
Together, these materials are intended to serve as a living foundation for WCSCD members and the wider SCD community, supporting strategic discussion, informing investment and policy priorities, identifying opportunities for collaboration and helping the field track progress over time.
